Cystic Fibrosis Foundation

Type: Organization
Name: Cystic Fibrosis Foundation
First reported 7 hours ago - Updated 7 hours ago - 1 reports

Poetry with a purpose

Jacob Forquer reads a selection of poetry during a Cystic Fibrosis Foundation benefit Saturday hosted by Bryant Dill of Some… ... [Published Bellefontaine Examiner - 7 hours ago]
First reported 20 hours ago - Updated 20 hours ago - 1 reports

AMS Talent Show Raises Money Through Entertainment

The Amherst Middle School’s Not So Secret Service club held its 3 rd  annual Talent Show on the evening of Friday, May 10, in the school cafeteria.The Not So Secret Service is a club dedicated to spreading kindness and helping others in the school, the ... [Published Amherst Patch - 20 hours ago]
First reported May 20 2013 - Updated May 20 2013 - 1 reports

Taking Strides To Beat Cystic Fibrosis

RICHLAND, Wash.- You may not hear about it very often, but cystic fibrosis affects a lot of people in our communities. In Richland Sunday, hundreds gathered for a walk to help fight the disease.The 5th annual event took off from the starting line at noon. ... [Published KNDO KNDU - May 20 2013]
First reported May 19 2013 - Updated May 19 2013 - 1 reports

"Great Strides" event raises money for cystic fibrosis

SAN DIEGO (CBS 8) - More than a thousand people started their day at De Anza Cove, in an effort to save the lives of those living with cystic fibrosis, a genetic disorder that mainly affects the lungs. News 8's Marcella Lee had the honor of serving as ... [Published KFMB-TV - May 19 2013]
First reported May 19 2013 - Updated May 19 2013 - 2 reports

Cystic Fibrosis: Charity and Industry Partner for Profit

To illustrate, consider the 'breakthrough' cystic fibrosis drug Kalydeco (ivacaftor), which is marketed by Vertex Pharmaceuticals.Vertex developed the drug with the help of a $75 million investment from the Cystic Fibrosis Foundation -- as well as a hefty ... [Published MedPage Today - May 19 2013]
First reported May 19 2013 - Updated May 19 2013 - 1 reports

Billerica Cystic Fibrosis Walk is Sunday

More than 300 people are expected to don their sneakers Sunday, May 19 for the 22nd annual Billerica Cystic Fibrosis Walk. The 5K walk starts at the Boys and Girls Club at 19 Campbell Road and circles to the Irish American Club at 616 Middlesex Turnpike ... [Published Wicked Local Billerica - May 19 2013]
First reported May 18 2013 - Updated May 18 2013 - 1 reports

Great Strides

Walk today. Add tomorrows. Join the Cystic Fibrosis Foundation at Sloan's Lake on May 18th for . Great Strides is the Cystic Fibrosis Foundation's largest national fundraising event. More than 250,000 walkers come together each year as one community for ... [Published Denver Post - May 18 2013]
First reported May 17 2013 - Updated May 18 2013 - 2 reports

Tens of Thousands to Walk for a Cure for Cystic Fibrosis

/PRNewswire-USNewswire/ -- Walks in nearly every state this weekend will raise funds to fight cystic fibrosis as part of Great Strides, the Cystic Fibrosis Foundation's largest national fundraising event.Cystic fibrosis is a fatal genetic disease that ... [Published TickerTech.com - May 17 2013]
First reported May 17 2013 - Updated May 17 2013 - 2 reports

Lemonade stand

TOWNSEND -- Brynn and Molly Demeo have some big plans for this weekend. They'll be running a lemonade stand in downtown Townsend to benefit the Cystic Fibrosis Foundation.Brynn, 7, and Molly, 5, even have an official name for their stand: The CURE CF ... [Published Townsend Times - May 17 2013]
First reported May 17 2013 - Updated May 17 2013 - 2 reports

ROSS Companies Raises Money and Walks in Support of Cystic Fibrosis Foundation

SOURCE ROSS CompaniesBETHESDA, Md.With more than $3,350"Giving back to the community and participating in events like the Great Strides Walk to support the Cystic Fibrosis Foundation is very important to our organization. ROSS Companies is committed to ... [Published KCEN HD - May 17 2013]
First reported May 17 2013 - Updated May 17 2013 - 1 reports

LOCAL BRIEFS: Superheroes to race for Cystic Fibrosis Foundation

_ The inaugural Superhero Strides for Cystic Fibrosis 5K will be held this Saturday at , 701 E. Main St., with the run/walk beginning at 8 a.m.Costumed runners, dressed as their favorite superheroes, will race through the streets of downtown Murfreesboro ... [Published Daily News Journal - May 17 2013]
First reported May 14 2013 - Updated May 15 2013 - 2 reports

Cystic Fibrosis Foundation Kicks Off Great Strides Walks in Atlanta, GA

SOURCE Cystic Fibrosis FoundationLocal Fundraiser Part of Nationwide Effort to Battle Fatal DiseaseATLANTAIn Atlanta, GAFunds raised through Great Strides have helped spur dramatic progress in the lives of those who have cystic fibrosis. Fifty years ago, ... [Published Kait 8 - May 15 2013]

Quotes

"We won't stop fighting for anything. Maybe that's the reason for why Sutton has CF, is that we can fight that much harder for every person out there that's living with CF and just fight for the end of this and cure this for all of them" Burnett said
..."The families that come out, they're the ones that make this possible," explained Amie Lerch from the Cystic Fibrosis Foundation. "They have such an amazing support group that come outout to support them at the walk, they support them with donations and sponsorships and it wouldn't be possible without all these amazing families."
"We are very close to a cure and everyone who supports us and everyone who's out here walking today is helping to make that happen" said Leigh Innocenti
"We believe the unsustainable drug prices in CML may be causing harm to patients" the doctors wrote in the journal, Blood

More Content

All (292) | News (264) | Reports (2) | Blogs (3) | Audio/Video (0) | Fact Sheets (0) | Press Releases (23)
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Poetry with a purpose [Published Bellefontaine Examiner - 7 hours ago]
Blog shares Atlanta girl's fight against cystic... [Published Fox 5 Atlanta WAGA - 8 hours ago]
AMS Talent Show Raises Money Through Entertainment [Published Amherst Patch - 20 hours ago]
Taking Strides To Beat Cystic Fibrosis [Published KNDO KNDU - May 20 2013]
Margie Clodfelter Sink [Published Lexington Dispatch - May 20 2013]
"Great Strides" event raises money for cystic f... [Published KFMB-TV - May 19 2013]
John O. Schwenn: Dalton State experience extend... [Published Dalton Daily Citizen - May 19 2013]
Cystic Fibrosis: Charity and Industry Partner f... [Published MedPage Today - May 19 2013]
Charity's investment a prescription for profits... [Published Milwaukee Journal Sentinel - May 19 2013]
Billerica Cystic Fibrosis Walk is Sunday [Published Wicked Local Billerica - May 19 2013]
Utahns making strides in fight against cystic f... [Published Fox13now - May 18 2013]
Cystic Fibrosis Walk raises funds to help fight... [Published WTen.com - May 18 2013]
Velma Doris Horton [Published Tribune Star - May 18 2013]
2013 “Milwaukee's Finest” Campaign Nearing Last... [Published TopNews United States - May 18 2013]
Great Strides: Walk for cystic fibrosis [Published News-Medical.Net - May 18 2013]
Great Strides [Published Denver Post - May 18 2013]
Tens of Thousands to Walk for a Cure for Cystic... [Published TickerTech.com - May 17 2013]
Tens of Thousands to Walk for a Cure for Cystic... [Published PR Newswire: Policy & Public Interest - May 17 2013]
Selling sips helps students learn economics les... [Published McPherson Sentinel - May 17 2013]
'Milwaukee's Finest' Campaign in final stretch ... [Published Small Business Times - May 17 2013]
Lemonade stand [Published Townsend Times - May 17 2013]
ROSS Companies Raises Money and Walks in Suppor... [Published KCEN HD - May 17 2013]
ROSS Companies Raises Money and Walks in Suppor... [Published TickerTech.com - May 17 2013]
ROSS Companies Raises Money and Walks in Suppor... [Published PR Newswire: Financial Services - May 17 2013]
Have a drink, have a cookie, help those with cy... [Published Sentinel And Enterprise - May 17 2013]
Beamsville family Organizing Garage Sale for Su... [Published TopNews New Zealand - May 17 2013]
LOCAL BRIEFS: Superheroes to race for Cystic Fi... [Published Daily News Journal - May 17 2013]
Cystic fibrosis group to hold fundraiser walk [Published Cape Cod Online - May 17 2013]
Walk to raise cystic fibrosis awareness [Published Tacoma News Tribune - May 17 2013]
Walk for Emily [Published Haverhill Gazette - May 17 2013]
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Blogs

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Kala wins grant to extend research of mucusal p... [Published PBR - News - Feb 06 2013]
Kala Pharmaceuticals has obtained a grant from the Cystic Fibrosis Foundation to apply mucusal penetrating product platform to bacterial biofilms. ...
Harder, Better, Faster, Stronger: Takeaways fro... [Published I Am Biotech - Dec 20 2012]
The chorus to Kanye West’s 2007 chart-topper Stronger can teach us volumes about speeding drug development. Harder:  Drug development is challenging.  It takes over 10 years and more than $1 billon to bring a therapy through the product pipeline, ...
FDASIA: A Step Forward for Patients [Published I Am Biotech - Dec 19 2012]
Earlier this year, Congress passed and President Obama signed the FDA Safety and Innovation Act (FDASIA) which included a re-authorization of the Prescription Drug User Fee Act (PDUFA). PDUFA provides essential funding to the FDA by authorizing the ...
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Press Releases

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Tens of Thousands to Walk for a Cure for Cystic... [Published PR Newswire: Policy & Public Interest - May 17 2013]
ROSS Companies Raises Money and Walks in Suppor... [Published PR Newswire: Financial Services - May 17 2013]
Cystic Fibrosis Foundation Kicks Off Great Stri... [Published PR Newswire: Policy & Public Interest - May 15 2013]
National My Favorite Muffin® Sale [Published Business Wire - May 09 2013]
National My Favorite Muffin® Sale [Published EON Retail - May 09 2013]
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