Dystonia

Type: Keyphrase
Name: Dystonia
First reported 21 hours ago - Updated 21 hours ago - 1 reports

Help resident raise awareness about dystonia

My name is Nicole Dean and I am from Folsom. Right now, I am in an uphill battle with a devastating neurological movement disorder called dystonia.More people suffer from dystonia than ALS and MS combined and yet no one seems to know what dystonia is. ... [Published Lincoln News Messenger - 21 hours ago]
First reported Sep 18 2014 - Updated Sep 18 2014 - 1 reports

MJFF enters into new research collaboration with Bachmann-Strauss Dystonia and Parkinson Foundation

The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) have announced a new collaborative research alliance to facilitate greater visibility and deeper investment in advancing dystonia ... [Published Pharmaceutical Business Review - Sep 18 2014]
First reported Sep 17 2014 - Updated Sep 17 2014 - 1 reports

Upcoming cornhole tournament for Dystonia

Updated: Wednesday, September 17 2014, 06:22 PM EDTRochester, N.Y. – Organizers of an unusual tournament at Frontier Field this coming weekend are hoping to raise awareness of Dystonia.The disease attacks your muscles with symptoms that lead to awkward ... [Published WOKR 13 - Sep 17 2014]
First reported Sep 17 2014 - Updated Sep 17 2014 - 7 reports

The Michael J. Fox Foundation Forms New Partnership With The

NEW YORK--(BUSINESS WIRE)--The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) announced today a new collaborative research alliance to facilitate greater visibility and deeper ... [Published BioSpace - Sep 17 2014]
First reported Sep 16 2014 - Updated Sep 16 2014 - 1 reports

'One day I was fine, the next I needed a wheelchair': Chelmsford...

Comments (0)A MOTHER suddenly struck down with a debilitating neurological disease, who now needs a wheelchair to get around, waited a year to be diagnosed.Jo Pawley, 32, of Newlands Spring, Chelmsford, was sitting at home when she felt a sudden pai ... [Published Essex Chronicle - Sep 16 2014]
First reported Sep 15 2014 - Updated Sep 15 2014 - 1 reports

Day at the Zoo Draws Hundreds in Support of Dystonia Research

Over 700 people attended the Cincinnati Zoo Walk to support dystonia research. - Sep. 15, 2014 - CINCINNATI -- A day at the zoo is a hallmark of childhood for many kids, but Saturday at the Cincinnati Zoo and Botanical Garden was extra special for sisters ... [Published Prlog - Sep 15 2014]
First reported Sep 12 2014 - Updated Sep 12 2014 - 1 reports

WHAT’S UP, DOC?: Mistaken for Crazy

By SHOAN YIN CHEUNG ’09“Hysteric” is usually not what comes to mind when speaking of Leon Fleisher, the American pianist and conductor.In 1964, Fleisher lost the use of his right hand due to a condition that was later identified in the early 1990s as ... [Published Cornell Daily Sun - Sep 12 2014]
First reported Sep 10 2014 - Updated Sep 10 2014 - 1 reports

Alvinston woman advocating for Dystonia Awareness Month in September

Looking back at old photographs, Chris Wygergangs can see the difference in her posture.Most pictures that are five years or older show her head leaning left, her chin tilted up, her left shoulder drooping from pain.“I didn't realize it at the time,” ... [Published London Free Press - Sep 10 2014]
First reported Sep 04 2014 - Updated Sep 04 2014 - 1 reports

Letter: Make September Dystonia Awareness Month

Editor: Dystonia is not a country somewhere in eastern Europe. It’s a neurological movement disorder that affects no fewer than 300,000 people in North America — including myself. Throughout the month of September I will be using my story to improve public ... [Published Elko Daily Free Press - Sep 04 2014]
First reported Sep 02 2014 - Updated Sep 02 2014 - 1 reports

His body contorted, Warren man's video may boost awareness about rare disease

Twisting its victims into jarring and often painful contortions, a little-known disease would get its own awareness month if a Warren man gets his way. And Mike Delise is using a video of his friend writhing uncontrollably on a carpeted floor to make ... [Published Detroit Free Press - Sep 02 2014]
First reported Sep 02 2014 - Updated Sep 02 2014 - 1 reports

Genetic Diagnosis of Two Dopa-Responsive Dystonia Families by Exome Sequencing

by Zhan-fang Sun, Yu-han Zhang, Ji-feng Guo, Qi-ying Sun, Jun-pu Mei, Han-lin Zhou, Li-ping Guan, Jin-yong Tian, Zheng-mao Hu, Jia-da Li, Kun Xia, Xin-xiang Yan, Bei-sha TangDopa-responsive dystonia, a rare disorder typically presenting in early childhood ... [Published Plosone.org - Sep 02 2014]
First reported Sep 02 2014 - Updated Sep 02 2014 - 2 reports

EHE International Showcases Bachmann-Strauss Foundation's Dystonia and Parkinson's Disease Awareness Campaign at Rockefeller Center

Quotes

"It's an opportune time to strategically shift our approach and leverage the current renewed interest in studying the brain and its disorders."
"I believe my art represents the power to overcome any challenge, mental or physical" he said
"It went so well it was almost worth me getting ill in a weird way" said Jo who is married with a 13-year-old daughter and a four-year-old son

More Content

All (53) | News (38) | Reports (0) | Blogs (14) | Audio/Video (0) | Fact Sheets (0) | Press Releases (1)
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Help resident raise awareness about dystonia [Published Lincoln News Messenger - 21 hours ago]
MJFF enters into new research collaboration wit... [Published Pharmaceutical Business Review - Sep 18 2014]
Upcoming cornhole tournament for Dystonia [Published WOKR 13 - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published BioSpace - Sep 17 2014]
Kittleson turns challenge into a career [Published Globe-Gazette - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published Fort Mills Times - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published EON Science - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published Digital Journal - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published 4 Traders - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published Business Wire Science: Science News - Sep 17 2014]
The Michael J. Fox Foundation Forms New Partner... [Published Business Wire Health News - Sep 17 2014]
'One day I was fine, the next I needed a wheelc... [Published Essex Chronicle - Sep 16 2014]
Day at the Zoo Draws Hundreds in Support of Dys... [Published Prlog - Sep 15 2014]
Local group starting med marijuana biz [Published Effingham Daily News - Sep 15 2014]
WHAT’S UP, DOC?: Mistaken for Crazy [Published Cornell Daily Sun - Sep 12 2014]
Pre-Order Booking Of ‘The Walking Dead’ Star No... [Published International Business Times Australia - Sep 11 2014]
Landmark Study Reveals Impacts of Neurological ... [Published 4 Traders - Sep 11 2014]
Alvinston woman advocating for Dystonia Awarene... [Published London Free Press - Sep 10 2014]
MRI Interventions: Brain Mapping Of The Future [Published Seeking Alpha - Sep 09 2014]
Mahlon DeLong receives Lasker award for pioneer... [Published Noodls - Sep 09 2014]
VG accepts ‘ice bucket’ challenge [Published The Daily Guardian - Sep 08 2014]
Runners take on the Great North Run for small N... [Published Darlington & Stockton Times - Sep 05 2014]
Support group for neurological movement disorde... [Published Gilroy Dispatch - Sep 04 2014]
Letter: Make September Dystonia Awareness Month [Published Elko Daily Free Press - Sep 04 2014]
His body contorted, Warren man's video may boos... [Published Detroit Free Press - Sep 02 2014]
Genetic Diagnosis of Two Dopa-Responsive Dyston... [Published Plosone.org - Sep 02 2014]
EHE International Showcases Bachmann-Strauss Fo... [Published Indianapolis Business Journal - Sep 02 2014]
EHE International Showcases Bachmann-Strauss Fo... [Published Reliance Trust - Sep 02 2014]
EHE International Showcases Bachmann-Strauss Fo... [Published Financial Services - Sep 02 2014]
Cynthia Sue Roorda Sanders, 67; New Albany [Published NewsandTribune.com - Aug 28 2014]
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Blogs

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The Michael J. Fox Foundation Forms New Partner... [Published EON Science - Sep 17 2014]
NEW YORK--(EON: Enhanced Online News)--The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) announced today a new collaborative research alliance to facilitate greater visibility ...
The Michael J. Fox Foundation Forms New Partner... [Published Business Wire Science: Science News - Sep 17 2014]
NEW YORK--(BUSINESS WIRE)--The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) announced today a new collaborative research alliance to facilitate greater visibility and deeper ...
The Michael J. Fox Foundation Forms New Partner... [Published Business Wire Health News - Sep 17 2014]
NEW YORK--(BUSINESS WIRE)--The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) announced today a new collaborative research alliance to facilitate greater visibility and deeper ...
[Comment] Deep brain stimulation for cervical d... [Published The Lancet Neurology online - Aug 08 2014]
Dystonia is a movement disorder characterised by sustained or intermittent muscle contractions that cause abnormal, often repetitive, movements, postures, or both. The severity and phenomenology of dystonia vary widely and various causes have been identified. ...
Lupus & possible ra [Published HealthBoards - Aug 07 2014]
I have lupus with possible ra. It's been a tough year. I lost my job and all my great doctors. I had to start the "doctor search" all over. It's been awful!!! I've been to a terrible rheumy that made me cry every time I saw him(3) timesI just switched ...
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Press Releases

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EHE International Showcases Bachmann-Strauss Fo... [Published Financial Services - Sep 02 2014]
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