Krabbe Disease

Type: Keyphrase
Name: Krabbe Disease
First reported Apr 07 2014 - Updated Apr 08 2014 - 1 reports

Faith a guiding light in Kelly’s fight against cancer

Former Buffalo Bill Jim Kelly wants everyone to know that he is not afraid of death.The Hall of Fame quarterback started radiation treatment Monday to fight a recurrence of cancer.Kelly said he was unsure what to expect, Monday, but knew his family would ... [Published WIVB - Apr 07 2014]
Entities: Jim Kelly, Radiation, Cancer
First reported Apr 08 2014 - Updated Apr 08 2014 - 1 reports

School children experience nature with professor's help

Volunteers work on the desert tortoise habitat at Copperwood Elementary School. The process requires digging down and installing concrete blocks so that a tortoise doesn’t dig its way out of the enclosure.Download image ASU’s Pamela Marshall (left) ... [Published Arizona State University - Apr 08 2014]
First reported Apr 06 2014 - Updated Apr 06 2014 - 1 reports

Local family seeks senate support for Hannah's law

Action NewsApril 5, 2014 (WPVI) -- A local family is pushing to change how newborns are screened for diseases after their daughter received a grim prognosis.Hannah Ginion's family is urging the Pennsylvania state senate to support her bill so other newborns ... [Published WPVI Philadelphia - Apr 06 2014]
First reported Mar 27 2014 - Updated Mar 27 2014 - 1 reports

Cord Blood Registry's Newborn Possibilities Program

25% of all the stem cell units released for use by CBR have been collected under their free access initiativeSAN BRUNO, Calif., March 27, 2014 /PRNewswire/ -- Stem cells derived from cord blood are a treatment option for families affected by certain types ... [Published Scottrade - Mar 27 2014]
First reported Mar 22 2014 - Updated Mar 23 2014 - 3 reports

Baby Girl With Rare Disease Inspires Nationwide Support

A fundraiser is set to take place next month for a Levittown, Pa. baby girl who captured the hearts of thousands nationwide and even inspired the proposal of a state law.JoJo’s Ice Cream & Water Ice will host an event raising money for Hannah Ginion, ... [Published NBC Connecticut - Mar 23 2014]
First reported Mar 20 2014 - Updated Mar 20 2014 - 1 reports

Krabbe's Disease: Findings in the Area of Krabbe's Disease Reported from Medical University of South Carolina

By a News Reporter-Staff News Editor at Pain & Central Nervous System Week -- Current study results on Krabbe's disease have been published. According to news reporting originating in Charleston, South Carolina, by NewsRx journalists, research stated, ... [Published NewsRX - Mar 20 2014]
First reported Mar 18 2014 - Updated Mar 18 2014 - 1 reports

Fate Therapeutics' CEO Discusses Q4 2013 Results - Earnings Call Transcript

Fate Therapeutics, Inc. ( FATE ) Q4 2013 Earnings Conference Call March 17, 2014 5:00 PM ETOperatorWelcome to Fate Therapeutics Fourth Quarter 2013 Financial Results Conference Call. At this time, all participants on a listen-only mode. This call is ... [Published Seeking Alpha - Mar 18 2014]
First reported Mar 14 2014 - Updated Mar 15 2014 - 1 reports

Hall of Fame QB Jim Kelly’s Cancer Returns

(BUFFALO, N.Y.) — Hall of Fame quarterback Jim Kelly’s cancer has returned. The Erie County Medical Center in Buffalo said Friday that cancer was found when the former Buffalo Bills star came in for follow-up testing after having oral surgery to remove ... [Published TIME.com - Mar 14 2014]
First reported Mar 12 2014 - Updated Mar 12 2014 - 1 reports

Heartbroken Family of Sick Toddler Takes Mission To Harrisburg

LEVITTOWN, Pa. -At a little more than one year old, it's easy to see this toddler's short life has had its challenges.Hannah Rose seemed like a normal baby at first until her parents noticed she wasn't developing like other kids.They were heartbroken ... [Published MyFoxPhilly.com - Mar 12 2014]
First reported Jan 05 2014 - Updated Jan 05 2014 - 1 reports

Methods and compositions for targeting agents into and across the blood-brain barrier and other endothelial cell microvascular barriers

The present invention relates to nucleic acids and polypeptides encoded thereby, whose expression is modulated in brain microvascular endothelial cells undergoing early dynamic inflammation-induced changes in blood-brain bather functionality. Such polypeptides ... [Published PharmCast - Jan 05 2014]

Quotes

"It's not a cure. It's a treatment, but she would probably would not be how she is today. She could have been just a normal baby, walking, talking, eating out of a bottle, or just playing. We wouldn't be sitting here today if she had that test done at birth" said Vicky
"We just love all of her followers," Pizzullo said. "They're just amazing. People are so supportive, especially our community."
...According to news reporting originating in Charleston, South Carolina, by NewsRx journalists, research stated, "Krabbe disease is a lethal, demyelinating condition caused by genetic deficiency of galactocerebrosidase (GALC) and..."
"I can't stress enough--the first 3 weeks, it starts showing symptoms in the brain. That's why it's very important to have them tested" pleaded Vicki

More Content

All (14) | News (13) | Reports (0) | Blogs (1) | Audio/Video (0) | Fact Sheets (0) | Press Releases (0)
sort by: Date | Relevance
School children experience nature with professo... [Published Arizona State University - Apr 08 2014]
Faith a guiding light in Kelly’s fight against ... [Published WIVB - Apr 07 2014]
Local family seeks senate support for Hannah's law [Published WPVI Philadelphia - Apr 06 2014]
Cord Blood Registry's Newborn Possibilities Pro... [Published Scottrade - Mar 27 2014]
Baby Girl With Rare Disease Inspires Nationwide... [Published NBC Connecticut - Mar 23 2014]
Girl Inspires Nationwide Support [Published NBC New York - Mar 22 2014]
Girl With Rare Disease Inspires Nationwide Support [Published NBC Philadelphia - Mar 22 2014]
Krabbe's Disease: Findings in the Area of Krabb... [Published NewsRX - Mar 20 2014]
Fate Therapeutics' CEO Discusses Q4 2013 Result... [Published Seeking Alpha - Mar 18 2014]
Hall of Fame QB Jim Kelly’s Cancer Returns [Published TIME.com - Mar 14 2014]
Heartbroken Family of Sick Toddler Takes Missio... [Published MyFoxPhilly.com - Mar 12 2014]
Methods and compositions for targeting agents i... [Published PharmCast - Jan 05 2014]
Hall of Famer Jim Kelly urges Pa. to expand Han... [Published Beaver County Times - Oct 22 2013]
Baby with fatal disease inspires Pa. bill to ex... [Published Beaver County Times - Aug 28 2013]
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Hall of Fame QB Jim Kelly’s Cancer Returns [Published TIME.com - Mar 14 2014]
(BUFFALO, N.Y.) — Hall of Fame quarterback Jim Kelly’s cancer has returned. The Erie County Medical Center in Buffalo said Friday that cancer was found when the former Buffalo Bills star came in for follow-up testing after having oral surgery to remove ...
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