Muscular Dystrophy

Type: Keyphrase
Name: Muscular Dystrophy
First reported 2 hours ago - Updated 2 hours ago - 1 reports

Walter Gair and Ida Mae Gair-Coleman

Brother and sister, having passed away only one week apart, both Walter and Ida lived with muscular dystrophy, but fought a good battle to not let it interfere with daily life.Ida has a son, James Gair; a daughter-in-law, Denay Gair; and three grandchildren, ... [Published Sun Gazette - 2 hours ago]
First reported 4 hours ago - Updated 4 hours ago - 1 reports

Behind bars all for a good cause

NBC 40's own weekend forecaster, Nick Pittman was put behind bars Thursday morning, but all for a good cause.Nick was accused of having a big heart and was arrested by volunteers for the Muscular Dystrophy Association.The M.D.A. raises money to send kids ... [Published NBC40 - 4 hours ago]
First reported Jul 31 2014 - Updated 14 hours ago - 1 reports

Is Teen Mom 2′s Leah Messer On Drugs?

Has Teen Mom 2 ‘s Leah Messer been using drugs to help cope?The Teen Mom 2 star recently cried to her husband on episode about a prescriptionfrom her doctor, saying that the medicine made her feel “messed up,” but a few of her friends are saying that ... [Published Inquisitr - Jul 31 2014]
First reported 14 hours ago - Updated 14 hours ago - 1 reports

Firefighters to "Fill the Boot" 11:47 am

This year marks the 60th anniversary of the Fill the Boot Program by firefighters nationwide to benefit the Muscular Dystrophy Association.Between now and Labor Day, more than 50 departments in the Ozarks will conduct the drives in their communities. ... [Published Waynesville Daily Guide - 14 hours ago]
First reported 15 hours ago - Updated 15 hours ago - 1 reports

Cross-country bike ride is medical fundraiser

SPRINGFIELD -- Two people are riding across the country for a special cause.SPRINGFIELD -- Two people are riding across the country for a special cause. They're riding bikes for Gabe Griffin. The 9-year old boy suffers from Duchenne's disease. It's a ... [Published WCIA 3 - 15 hours ago]
First reported 15 hours ago - Updated 15 hours ago - 1 reports

Muscular dystrophy biotechs buoyed by FDA's encouragement on accelerated OKs

Sarepta CEO Chris GarabedianThe FDA's Janet Woodcock may be Sarepta CEO Chris Garabedian's favorite person today.With the news about the company focused this week on the embarrassing move by Sarepta's ($SRPT) board to curtail Garabedian's direct involvement ... [Published FierceBiotech - 15 hours ago]
First reported 16 hours ago - Updated 16 hours ago - 1 reports

Key issues at council

The Arborg Town Council held their second monthly meeting on July 23 at the Arborg Municipal Offices. The meeting had a light agenda, but touched on some key issues within the community.The most discussed point of the meeting was the 2014 road works project. ... [Published Interlake Group - 16 hours ago]
First reported 22 hours ago - Updated 22 hours ago - 1 reports

Andy Wilson ready for tough mudder challenge to raise money for thebenhodgsonfund.co.uk

A 45-year-old man is to endure the "Tough Mudder' event in order to raise funds for a Driffield boy who suffers from muscular dystrophy.Andy Wilson is raising money for 13-year-old Ben Hodgson by completing a 12-mile hardcore obstacle course designed ... [Published NewsRT.co.uk - 22 hours ago]
First reported Jul 30 2014 - Updated Jul 30 2014 - 1 reports

Floor Debate and Vote on H.R. 594, the "Paul D. Wellstone Muscular Dystrophy Act"

<a style="font-size: 15px; font-weight: bold;font-decoration: none;" href="http://www.youtube.com/watch?v=r_khGRLZC-s&feature=youtube_gdata"&gt;Floor Debate and Vote on H.R. 594, the "Paul D. Wellstone Muscular Dystrophy Act" On July 28, 2014, the ... [Published Committee on Energy and Commerce - YouTube Channel - Jul 30 2014]
First reported Jul 30 2014 - Updated Jul 30 2014 - 1 reports

Fourth annual Muscle Warrior 10k, 5k, 1k wheelchair and superhero toddle is resounding success!

The beautiful grounds of Haileybury College in Hertford once again played host to the 4 th annual Muscle Help Foundation Muscle Warrior ‘Run for their Lives’ 10k, 5k, 1k wheelchair circuit and 1k Family Toddle on Sunday 13 th July.Almost 150 runners and ... [Published Enable Magazine - Jul 30 2014]
First reported Jul 30 2014 - Updated Jul 30 2014 - 1 reports

High speed help for disabled boy from Connah's Quay

THRILL-SEEKERS are being hunted for 100mph zipwire challenge in aid of a disabled seven-year-old boy.Debbie Vaughan is re-appealing to adventurers to take on the mile-long speedy challenge to raise funds for her son Harry Vaughan, who was born with the ... [Published Wrexham Leader - Jul 30 2014]
First reported Jul 30 2014 - Updated Jul 30 2014 - 1 reports

Anderson Strathern in partnership to support disabled Scots

Anderson Strathern is to lend its help to the thousands of Scottish families affected by severe genetic muscle-wasting conditions, after launching a partnership with the Muscular Dystrophy Campaign today.Anderson Strathern will advise and assist staff ... [Published Anderson Strathern - Jul 30 2014]

Quotes

...Therapeutics: If foundations start to act like venture capitalists, saying, "Here's $200,000, but we'd like some stock in your company," or, "If the drug reaches the market, we'd like a royalty from sales" now you've got a 501(c)(3), tax-exempt, not for profit disease organization, financially benefiting from an approved drug that serves its constituent...
"We think Leah could be taking powerful painkillers including Lortab and Percocet. They are very easy to get on the streets in her hometown."
...recommending the approval of Translarna for nonsense mutation Duchenne muscular dystrophy," Peltz said in a statement sent to FierceBiotech. "Upon ratification by the European Commission, we expect Translarna will be the first-ever drug approved in Europe as a treatment of the underlying cause of the disease. For the U S , we have plans to meet with the FDA near-term to obtain additional feedback and discuss potential pathways to bring Translarna to U S patients as rapidly as possible."
'How am I going to change the world if I'm sitting on my backside watching telly,' she said. "I'd rather be doing something more productive."

More Content

All (800) | News (676) | Reports (0) | Blogs (116) | Audio/Video (0) | Fact Sheets (0) | Press Releases (7)
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Walter Gair and Ida Mae Gair-Coleman [Published Sun Gazette - 2 hours ago]
French Connections [Published Pharmaceutical Executive - 3 hours ago]
Life or death plea from Michaela [Published Down Recorder - 3 hours ago]
Behind bars all for a good cause [Published NBC40 - 4 hours ago]
Good looking grass, yard color selections possi... [Published Tyler Morning Telegraph - 7 hours ago]
Life Science Partnerships With Patient Foundati... [Published Life Science Leader - 10 hours ago]
'Teen Mom' Leah Messer addicted to pain pills? [Published Examiner.com - 14 hours ago]
Firefighters to "Fill the Boot" 11:47 am [Published Waynesville Daily Guide - 14 hours ago]
What “Confidence” Looks Like [Published Tolucan Times - 14 hours ago]
Cross-country bike ride is medical fundraiser [Published WCIA 3 - 15 hours ago]
Help this family get the money they’re fighting... [Published Kidspot Australia - 15 hours ago]
Muscular dystrophy biotechs buoyed by FDA's enc... [Published FierceBiotech - 15 hours ago]
Key issues at council [Published Interlake Group - 16 hours ago]
Campaign of the week: Nordstrom's catalogue sta... [Published Retail Week - 18 hours ago]
Woman went blind during university degree but m... [Published Mail Online UK - 19 hours ago]
Andy Wilson ready for tough mudder challenge to... [Published NewsRT.co.uk - 22 hours ago]
Samantha Alexander overcomes sudden blindness t... [Published Sydney Morning Herald - 23 hours ago]
Next round's on Nick! DIY SOS star raises a gla... [Published South Wales Evening Post - Jul 31 2014]
Macular degeneration in juveniles has varied ca... [Published Pocono Record - Jul 31 2014]
Is Teen Mom 2′s Leah Messer On Drugs? [Published Inquisitr - Jul 31 2014]
GENOMIC VISION : Reaches Significant Milestones... [Published 4 Traders - Jul 31 2014]
Is Leah Messer On Drugs? ‘Teen Mom 2’ Star Taki... [Published International Business Times - Jul 31 2014]
Cyclists Ride Across America to Support Young F... [Published WYZZ-TV - Jul 31 2014]
PTC Therapeutics Announces Expanded Access Prog... [Published Drug Discovery Online - Jul 31 2014]
Fourth annual Muscle Warrior 10k, 5k, 1k wheelc... [Published Enable Magazine - Jul 30 2014]
Webster Pond loop trail to be made accessible t... [Published Syracuse Online - Jul 30 2014]
Amputee trains for MMA [Published WPBF - Jul 30 2014]
Mural promoting inclusiveness and awareness ina... [Published Wicked Local Sharon - Jul 30 2014]
Hexham: Runner John returns to the fells for wo... [Published Hexham Courant - Jul 30 2014]
Floor Debate and Vote on H.R. 594, the "Paul D.... [Published Committee on Energy and Commerce - YouTube Channel - Jul 30 2014]
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Blogs

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Floor Debate and Vote on H.R. 594, the "Paul D.... [Published Committee on Energy and Commerce - YouTube Channel - Jul 30 2014]
<a style="font-size: 15px; font-weight: bold;font-decoration: none;" href="http://www.youtube.com/watch?v=r_khGRLZC-s&feature=youtube_gdata"&gt;Floor Debate and Vote on H.R. 594, the "Paul D. Wellstone Muscular Dystrophy Act" On July 28, 2014, the ...
PPMD Hails House Passage of MD-CARE Act Amendments [Published PR Newswire: Policy & Public Interest - Jul 29 2014]
WASHINGTON, July 29, 2014 /PRNewswire-USNewswire/ -- The House of Representatives today approved legislation to update the landmark Muscular Dystrophy Community Assistance, Research, and Education (MD-CARE) Act so the law continues getting results ...
Local CITGO Marketer and CITGO Host 25TH Annual... [Published theCSRfeed - Jul 24 2014]
Quality State Oil, CITGO and Miss Wisconsin Raise Funds for Muscular Dystrophy SOURCE: CITGO Petroleum Corporation DESCRIPTION: Elkhart Lake, Wis., July 24, 2014 /3BL Media/ – Local CITGO Marketer Quality State Oil and CITGO Petroleum Corporation ...
Want to Unlock the 21st Century Cure? Hearing W... [Published FDA Law Blog - Jul 16 2014]
By James E. Valentine* & Sara A. Khan** –On July 11, 2014, the House Energy and Commerce’s Subcommittee on Health held its fourth hearing, as part of its 21st Century Cures Initiative, to seek input regarding the incorporation of patient perspectives ...
“The World in 2025″ Predicts Abundant Solar Pow... [Published Singularity Hub - Jul 13 2014]
In a recently released vision of the future , Thomson Reuters analysts predict solar power will be the dominant form of energy by 2025. Further, the report states genomic testing and manipulation will be common and lead to better prevention and ...
1 2 3 4 5 6 7 8 9 10 ...

Press Releases

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PPMD and NHLBI Co-Sponsor Working Group Meeting... [Published Financial Services - Jul 09 2014]
Prosensa Awarded $200,000 Research Grant from PPMD [Published GlobeNewswire: Advertising News - Jun 27 2014]
First-Ever Patient-Initiated "Guidance for Indu... [Published Financial Services - Jun 25 2014]
Prosensa Announces Regulatory Path Forward for ... [Published GlobeNewswire: Advertising News - Jun 03 2014]
3D Systems Provides Students With Disabilities ... [Published 3D Systems Latest News - Apr 04 2014]
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